Hypermobility & The Ehlers-Danlos Syndromes: Clinical considerations


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Overview  

This CPD course...

  • is delivered: As an online course
  • is for: Nutritional therapy professional, Nutritionists, Dieticians, Naturopaths, health care providers including Allied Health professionals interested in learning about the multi-system nature of the Ehlers-Danlos Syndromes & the importance of a person–centred manner that recognises individuals’ unique differences and complex nature of the condition.
  • is with: Helen Spriggs
  • spans: 1 day
  • provides:BANT CPD 5 hours, NNA CPD 5 hours, ION CPD 5 hours*

The Ehlers-Danlos Syndromes have an increasing visibility from charity awareness campaigns, research advances, celebrity profiles & hard work of practitioner & patient groups. However, time to diagnosis is still extensive for many, with many healthcare professionals requiring additional knowledge and understanding of the varied multi-system involving presentation. This course aims to shine a light on the spectrum of hypermobility conditions & the role health and nutrition professionals can play in supporting patients of Hypermobility Spectrum Disorder & The Ehlers-Danlos Syndromes.

This one-day course provides clinicians with the opportunity to start learning about the complex nature of the Ehlers-Danlos Syndromes through exploration and discussion of clinical considerations for appropriate referrals, support, and client safety.

Clinicians such as nutrition professionals may be missing the opportunity to identify those clients who potentially fulfil EDS criteria and need onward signposting for specialist referral, medical diagnosis, and support. For those practitioners who have worked with clients who have a hEDS/HSD diagnosis but underestimated the impact of hEDS/HSD on a client’s wider health may be compromising wellbeing.

This course will provide the chance to learn about the multi-system nature of the Ehlers-Danlos Syndromes It will then explore the potential challenges & mis-diagnosis clients & practitioners face in managing the symptoms of EDS/HSD. It aims to give practitioners guidance on best practice framed in the latest research for signposting clients and recommendations.

Finally, it will discuss the evidence & role of nutrition as part of multi-discipline, collaborative, patient centered care.

Examples of the questions it will answer;

  • How can practitioners help signpost clients they are concerned may have EDS/HSD?
  • What considerations should practitioners have if approached by an EDS/HSD patient?
  • Where can I learn more about EDS/HSD?

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What will I learn?

By the end of the course you will be able to:

  • Identify potential missed opportunities to signpost clients for appropriate assessment & support
  • Apply new research findings on EDS & comorbidities in your approach to practice by avoiding generic restrictive ‘diets’ and tailoring recommendations based on specific health concerns
  • Have an increased appreciation and knowledge of the need for a tailored approach for EDS & HSD
  • Understand that tests/supplements/’diets’ must be framed in the case context of EDS/HSD
  • Feel confident in your boundaries of practice through latest best practice guidance and referral tools.

What will be covered?

9.45am

  • Webinar waiting room opened

Session 1: 10.00 am-11.15 am  

  • ION introductions and housekeeping
  • What is hypermobility & when it can be problematic
  • What Ehlers-Danlos Syndrome isn’t
  • Attendee reflection / interaction – 1 line on what else they know about EDS, via chat box plus Q and A
  • EDS / HSD classifications, prevalence & misdiagnosis
  • Common clinical presentations of a potential hEDS/HSD patient
  • Session key points and a few questions to check participants’ understanding of the session 
  • Q and A

Session 2:  11.30 am – 12.45 pm

  • Established clinical signs & symptoms; Case history / MSK / Dental / Skin / Genetics
  • An overview of the referral & diagnostic process
  • Attendee interaction to discuss approach for referral and short Q and A
  • Established comorbid conditions of hEDS / HSD Part I; GI / Urogynae / Dysauto / CV
  • Session key points and a few questions to check participants’ understanding of the session
  • Q and A

Session 3:  1.45 pm – 3.00 pm

  • Established comorbid conditions of EDS / HSD Part II; Endo / Nervous / Neuro / Immune
  • Discussion with attendee reflection on their cases considering comorbidities and short Q and A
  • The role of testing in hEDS / HSD
  • Overlapping diagnoses with need for specialties in nutrition & wider care
  • Session key points and a few questions to check participants’ understanding of the session
  • Q and A

Session 4:  3.15 pm – 4.30 pm

  • The evidence for proposed ‘diets’ – low FODMAP / low histamine
  • The evidence & role for nutrient supplementation in hEDS / HSD
  • Discussion on diets/supplements and short Q and A
  • The evidence & role for personalised multi-disciplinary care in hEDS / HSD
  • Patient safety
  • Session key points and a few questions to check participants’ understanding of the session
  • Q and A
  • ION wrap up and thanks

Who is leading the course?

Helen Spriggs BA(Hons), DipNT, MSc Advanced Nutrition (Research & Practice), mBANT, rCNHC, mIFM, mRSM

Registered Nutritional Therapist

Member of Diet & Nutrition Working Group – The International Consortium for The Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders

Working in private practice for over five years has led Helen to specialize in supporting clients with musculoskeletal related complaints including hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder. Combining nutrition support alongside a physical therapy clinic allows for collaborative management of patients, particularly those with MSK issues. Following qualifying as a Registered Nutritional Therapy practitioner, Helen undertook her MSc in Advanced Nutrition (Research & Practice) carrying out a piece of primary research entitled: “Nutritional Interventions for symptoms management in Ehlers-Danlos Syndrome: An Interpretative Phenomenological Analysis of patients’ lived experience” for her dissertation. 

Additionally, having focused clinical work and vast quantities of EDS focused CPD including several Ehlers-Danlos Society Project ECHO programs, Helen was accepted into Diet and Nutrition Working Group for The International Consortium on Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders. The working group is comprised of independent nutrition practitioners, working to identify areas of relevant research and best practice relating to nutrition to encompass the Ehlers-Danlos Syndromes and comorbid conditions.


How will I be taught?

ION’s courses reflect best practice for online teaching and learning practice.  We aim to offer a variety of interactive formats to support you with participating in online events.  We also provide regular review and recap sessions and encourage critical thinking and reflection. 

The course will include online presentations (maximum 20 mins) interspersed with individual exercises, recap sessions  and Q&A.


How much does it cost and what’s included?

The course price is £119.00.

Live online course and ability to ask some questions (within set time)

PDF of Powerpoint(s) plus relevant resources, reference list and further reading recommendation

Edited recording available to view for 90 days

Confirmation of attendance and ION CPD 5 hours*

BANT CPD 5 hours, NNA CPD 5 hours


Important information

Bookings

Please check you have read ION’s FAQs including our cancellation and refund policy before booking

Click the "BOOK" button at the top or bottom of this page - you will be taken to our webinar platform 'Big Marker' to purchase your ticket.

Please ensure you use the same name and email to register, login and purchase tickets on our website and any partner platforms.

What should I do if a course is full?

If a course is full when you try to book, please make sure you are signed up to receive our CPD courses mailings. The recording and materials will be available to view on demand a few weeks after the course and you should be notified about this.

Registration links and materials

If you successfully book on a course, you will be automatically sent a link to the course when you register. Please do not share this with anyone. This is set up to only allow entry to the first user that clicks it. Further links cannot be generated.

Approximately 2 weeks before the course you will be sent an email so that you can access course materials. 

Where indicated in the programme, a recording of the course will be available a few weeks after the course to view for 90 days

CPD

Participation in an ION CPD course forms part of a practitioner's or individual's ongoing learning. It does not qualify a non-clinically trained practitioner or individual to work in a clinical setting. Individual’s boundaries of safe work, advice or practice are primarily determined by their formal qualifications and related personal insurance.

ION does not send out certificates for live online courses

* ION will send an automatic confirmation of attendance providing 5 hours of ION CPD when a participant has been present for the duration of the course (as reported via the online platform)

If you have a queries, please email [email protected]