CPD on-demand | Hypermobility & The Ehlers-Danlos Syndromes: Clinical considerations Hypermobility & The Ehlers-Danlos Syndromes: Clinical considerations Watch the trailer Overview This CPD course... is delivered: As an online on-demand-video from a live course is for: Nutritional therapy practitioners, Nutritionists, Dieticians, Naturopaths, health care providers including Allied Health professionals interested in learning about the multi-system nature of the Ehlers-Danlos Syndromes & the importance of a person–centred manner that recognises individuals’ unique differences and complex nature of the condition. is with: Helen Spriggs spans: 5 hours recording time provides: BANT CPD 5 hours, NNA CPD 5 hours The Ehlers-Danlos Syndromes have an increasing visibility from charity awareness campaigns, research advances, celebrity profiles & hard work of practitioner & patient groups. However, time to diagnosis is still extensive for many, with many healthcare professionals requiring additional knowledge and understanding of the varied multi-system involving presentation. This course aims to shine a light on the spectrum of hypermobility conditions & the role health and nutrition professionals can play in supporting patients of Hypermobility Spectrum Disorder & The Ehlers-Danlos Syndromes. This course provides clinicians with the opportunity to start learning about the complex nature of the Ehlers-Danlos Syndromes through exploration and discussion of clinical considerations for appropriate referrals, support, and client safety. Clinicians such as nutrition professionals may be missing the opportunity to identify those clients who potentially fulfil EDS criteria and need onward signposting for specialist referral, medical diagnosis, and support. For those practitioners who have worked with clients who have a hEDS/HSD diagnosis but underestimated the impact of hEDS/HSD on a client’s wider health may be compromising wellbeing. This course will provide the chance to learn about the multi-system nature of the Ehlers-Danlos Syndromes It will then explore the potential challenges & mis-diagnosis clients & practitioners face in managing the symptoms of EDS/HSD. It aims to give practitioners guidance on best practice framed in the latest research for signposting clients and recommendations. Finally, it will discuss the evidence & role of nutrition as part of multi-discipline, collaborative, patient centered care. Examples of the questions it will answer; How can practitioners help signpost clients they are concerned may have EDS/HSD? What considerations should practitioners have if approached by an EDS/HSD patient? Where can I learn more about EDS/HSD? Book What will I learn? By the end of the recording you will be able to: Identify potential missed opportunities to signpost clients for appropriate assessment & support Apply new research findings on EDS & comorbidities in your approach to practice by avoiding generic restrictive ‘diets’ and tailoring recommendations based on specific health concerns Have an increased appreciation and knowledge of the need for a tailored approach for EDS & HSD Understand that tests/supplements/’diets’ must be framed in the case context of EDS/HSD Feel confident in your boundaries of practice through latest best practice guidance and referral tools. What will be covered? Course details Session 1 (Approx 1 hour 25 Minutes) Introduction into the spectrum of Hypermobility & Ehlers-Danlos Syndromes ION introductions and housekeeping What is hypermobility & when it can be problematic What Ehlers-Danlos Syndrome isn’t Attendee reflection / interaction – 1 line on what else they know about EDS, via chat box plus Q and A EDS / HSD classifications, prevalence & misdiagnosis Common clinical presentations of a potential hEDS/HSD patient Session key points and a few questions to check participants’ understanding of the session Q and A Session 2 (Approx 1 hour 10 minutes) Ehlers-Danlos Syndromes referral, diagnosis & established comorbidities Established clinical signs & symptoms; Case history / MSK / Dental / Skin / Genetics An overview of the referral & diagnostic process Attendee interaction to discuss approach for referral and short Q and A Established comorbid conditions of hEDS / HSD Part I; GI / Urogynae / Dysauto / CV Session key points and a few questions to check participants’ understanding of the session Q and A Session 3 (Approx 1 hour 20 minutes) Acknowledged comorbidities of EDS & avenues for considerations Established comorbid conditions of EDS / HSD Part II; Endo / Nervous / Neuro / Immune Discussion with attendee reflection on their cases considering comorbidities and short Q and A The role of testing in hEDS / HSD Overlapping diagnoses with need for specialties in nutrition & wider care Session key points and a few questions to check participants’ understanding of the session Q and A Session 4 (Aprrox 1 hour 30 minutes) Snapshot into the existing research hEDS/HSD patient management & safety The evidence for proposed ‘diets’ – low FODMAP / low histamine The evidence & role for nutrient supplementation in hEDS / HSD Discussion on diets/supplements and short Q and A The evidence & role for personalised multi-disciplinary care in hEDS / HSD Patient safety Session key points and a few questions to check participants’ understanding of the session Q and A ION wrap up and thanks Who is leading the course? Helen Spriggs BA(Hons), DipNT, MSc Advanced Nutrition (Research & Practice), mBANT, rCNHC, mIFM, mRSM Registered Nutritional Therapist Member of Diet & Nutrition Working Group – The International Consortium for The Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders Working in private practice for over five years has led Helen to specialize in supporting clients with musculoskeletal related complaints including hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder. Combining nutrition support alongside a physical therapy clinic allows for collaborative management of patients, particularly those with MSK issues. Following qualifying as a Registered Nutritional Therapy practitioner, Helen undertook her MSc in Advanced Nutrition (Research & Practice) carrying out a piece of primary research entitled: “Nutritional Interventions for symptoms management in Ehlers-Danlos Syndrome: An Interpretative Phenomenological Analysis of patients’ lived experience” for her dissertation. Additionally, having focused clinical work and vast quantities of EDS focused CPD including several Ehlers-Danlos Society Project ECHO programs, Helen was accepted into Diet and Nutrition Working Group for The International Consortium on Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders. The working group is comprised of independent nutrition practitioners, working to identify areas of relevant research and best practice relating to nutrition to encompass the Ehlers-Danlos Syndromes and comorbid conditions. How will I be taught? ION’s CPD courses reflect best practice for online teaching and learning practice. This is an edited recording of a live course. It contains presentations interspersed with exercises and recorded Q&A sessions. How much does it cost and what’s included? The course price is £89.00. PDF of Powerpoint(s) plus relevant resources, reference list and further reading recommendation Approx. 5 hours edited recording You can access the course up to 12 times. BANT CPD 5 hours, NNA CPD 5 hours Important information About this on-demand recording The speaker is not present on this recording and you will not be able to ask them questions but you will be able to see the recorded Q and A sessions. This course was recorded in October 2022. All recordings are removed approximately one year after they are recorded so that we can ensure our courses contain up to date information. You will be able to access the course up to 12 times before the materials are taken down. How do I book? Please check you have read ION’s FAQs including our cancellation and refund policy before booking Click the "BOOK" button at the top or bottom of this page - you will be taken to our webinar platform 'Big Marker' to purchase your ticket. Please ensure you use the same name and email to register, login and purchase tickets on our website and any partner platforms. Registration links and materials You will be automatically sent a link to the course when you register. Please do not share this with anyone. This is set up to only allow entry to the first user that clicks it. Further links cannot be generated. Your booking confirmation email contains the password needed to access course materials (where applicable). Please type (rather than copying and pasting) this password when prompted and please ensure there are no spaces at the beginning or end. To download the course materials, click the HANDOUTS button in the video player (situated between the VOLUME and QUESTIONS buttons). CPD Participation in an ION CPD course forms part of a practitioner's or individual's ongoing learning. It does not qualify a non-clinically trained practitioner or individual to work in a clinical setting. Individual’s boundaries of safe work, advice or practice are primarily determined by their formal qualifications and related personal insurance. This on-demand recording is recognised by BANT and the NNA for 5 hrs CPD Non BANT or NNA registered practitioners may use this course for their CPD depending on the requirements and guidance of their professional body. ION cannot provide certificates for online courses If you have a queries, please email [email protected] Book Manage Cookie Preferences